Tia has epidermolysis bullosa – known as ‘butterfly skin’

A girl looking at her phone while a group watch her

Four-year-old Tia Foster-Price has a condition called epidermolysis bullosa (EB).

It means her mum Anne Marie has to treat her skin and pop her blisters every day – and it stops her running around with her friends.

Anne Marie says she thinks: “Is she going to die this year? Is she going to live?”

But she hopes Tia might benefit from a pioneering genetic treatment that recently gave another little boy with EB a new skin.

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